Name: Narcolepsy Network 2021 Annual Conference
Start: 01/10/2021 02:15 PM +00:00
End: 03/10/2021 11:30 PM +00:00

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Narcolepsy Network info booth

There's More to Living With Narcolepsy Than Managing the Symptoms. Narcolepsy is a chronic condition for which there is no cure, so learning to live with it is important.&nbsp; 
Managing your narcolepsy symptoms can be challenging enough, but you also need to be aware of the potential for having other medical conditions. People with narcolepsy may be more likely to have other health conditions than the general population, so learn more about your overall health.&nbsp;

More Than Tired, presented by Jazz Pharmaceuticals

Takeda

We&rsquo;re working to make the dream of better days and nights a reality for people with narcolepsy.&nbsp;
Avadel is a biopharmaceutical company focused on transforming medicines to transform lives. Our approach includes applying innovative solutions to the development of medications that address the challenges patients face with current treatment options.

Avadel

Harmony Biosciences is a pharmaceutical company headquartered in Plymouth Meeting, PA. The company was established in October 2017 with a vision to develop and commercialize innovative therapies for people living with rare neurological disorders who have unmet medical needs.
At Harmony Biosciences, we share the singular purpose of developing and providing new medications to help people who are living with rare, neurological diseases. Our culture is defined by our core values &ndash; keeping patients at the heart of all we do, acting with integrity and ethics, working with a one-team attitude, leading with the science as we identify clinical possibilities, and delivering excellence.
Harmony Biosciences currently markets one prescription product in the United States. For information on our product, please visit: <a title="https://www.harmonybiosciences.com/our-products" href="https://www.harmonybiosciences.com/our-products">https://www.harmonybiosciences.com/our-products</a>
Please join us at our presentation on Sunday, October 3 at 12:40PM Eastern to learn more from Harmony.

Harmony Biosciences

Keith Harper

Amy Kant

Welcome Message

Dr. Anne Marie Morse and patient advocate, Alyssa, will share their experiences managing the disruption caused by narcolepsy, both day and night. They will discuss the impact of narcolepsy and some potential coping strategies which may help, including lifestyle changes and prioritizing more natural sleep patterns. They&rsquo;ll end with a discussion about advocating for your own care and how to engage in shared decision making with your sleep doctor about your treatment priorities.

Anne Marie Morse, DO

Alyssa Temple, RN & PWN

Physician and PWN Perspectives: Managing the Disruption of Narcolepsy - by Avadel Pharmaceuticals

Break

Hear Dr. Singh talk about an FDA-approved treatment for adults with narcolepsy.

Haramandeep Singh, MD

An FDA-Approved Medication for Adults With Narcolepsy - by Harmony Biosciences

Jazz Medical Affairs will review the clinical trials on XYWAV&reg; in narcolepsy for pediatrics and adults, and share clinical trial data supporting the FDA approval of idiopathic hypersomnia in adults.&nbsp;

Daniel Zambrano, MS, PharmD

Shawn Candler, MD

Jazz Clinical Overview of XYWAV® (calcium, magnesium, potassium, and sodium oxybates): FDA approved treatments for cataplexy/EDS in narcolepsy and idiopathic hypersomnia presentation

Please join us for the Annual Narcolepsy Network Membership Meeting.

Sharon O'Shaughnessy

Paul Reynolds

Rajeev Sachdeva

Narcolepsy Network Membership Meeting

Please join us for a session on Thriving with Narcolepsy by Dr. Strunc.

Michael Strunc, MD

Thriving with Narcolepsy

Newcomer Chat Session

Narcolepsy As We Age will cover the following:
<ul>
<li>Narcolepsy changes as we age.</li>
<li>Children have sleepiness and cataplexy that is different from Adults.</li>
<li>Adults have different concerns, particularly women because of pregnancy.</li>
<li>The narcolepsy appears to change in the elderly.</li>
</ul>

Michael Thorpy, MD

Narcolepsy As We Age

Living with cataplexy? Learn how to navigate the challenges with family, school, work and more. Even if you are not diagnosed with cataplexy, come learn about the varying degrees of symptoms. Dr. Chad Ruoff will give you an overview and facilitate the panel discussion and questions.
We will review various topics on cataplexy ranging from presentation to pathophysiology to current and future treatment options.&nbsp;
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Matt Horsnell

Chad Ruoff, MD

Cybel Lewis

Caroline Arnette

Real Talk About Cataplexy People With Narcolepsy Panel Discussion

This session discusses the stigma associated with disability, disability program options, an overview of the social security disability process, and ways to prove a disability claim.

Agenda

Speakers22 Speakers

Lois Krahn, MD

Michael Thorpy, MD

Chad Ruoff, MD

Charles Bae MD, MHCI, FAASM

Ariel Neikrug, PhD

Matt Horsnell

Anjel Burgess, JD

Michael Strunc, MD

Sue Dambrauskas

Caroline Arnette

Cybel Lewis

Daniel Zambrano, MS, PharmD

Alyssa Temple, RN & PWN

Anne Marie Morse, DO

Haramandeep Singh, MD

Shawn Candler, MD

Rajeev Sachdeva

Cybel Lewis

Paul Reynolds

Sharon O'Shaughnessy

Keith Harper

Amy Kant

Exhibitors5 Exhibitors

Narcolepsy Network info booth

More Than Tired, presented by Jazz Pharmaceuticals

Takeda

Avadel

Harmony Biosciences

Sponsors5 Sponsors

Narcolepsy Network info booth

More Than Tired, presented by Jazz Pharmaceuticals

Takeda

Avadel

Harmony Biosciences

Agenda

Speakers.css-12fw9l1{margin:0;font-size:1.4rem;font-weight:500;line-height:1.5;color:#33587f;font-family:'Poppins',sans-serif;margin-left:0.8rem;}22 Speakers

Lois Krahn, MD

Michael Thorpy, MD

Chad Ruoff, MD

Charles Bae MD, MHCI, FAASM

Ariel Neikrug, PhD

Matt Horsnell

Anjel Burgess, JD

Michael Strunc, MD

Sue Dambrauskas

Caroline Arnette

Cybel Lewis

Daniel Zambrano, MS, PharmD

Alyssa Temple, RN & PWN

Anne Marie Morse, DO

Haramandeep Singh, MD

Shawn Candler, MD

Rajeev Sachdeva

Cybel Lewis

Paul Reynolds

Sharon O'Shaughnessy

Keith Harper

Amy Kant

Exhibitors.css-16umhvd{margin:0;font-size:1.4rem;font-weight:500;line-height:1.5;color:#33587f;font-family:'Poppins',sans-serif;color:#FFFFFF;margin-left:0.8rem;font-weight:400;}5 Exhibitors

Narcolepsy Network info booth

More Than Tired, presented by Jazz Pharmaceuticals

Takeda

Avadel

Harmony Biosciences

Sponsors5 Sponsors

Narcolepsy Network info booth

More Than Tired, presented by Jazz Pharmaceuticals

Takeda

Avadel

Harmony Biosciences

Speakers22 Speakers

Exhibitors5 Exhibitors